Rajender kumar - Latest News Update, Information, Photos & Videos on Rajender kumar at Lokmat Times

To call for effective dialogue and decisive action against the alarming challenges of rare diseases in India, People to People Health Foundation (PPHF), a public health orgzation working towards better healthcare and Niti Aayog, Co-hosted a Global Rare Disease Conference under the initiative 'Blueprint for Rare Diseases in India - Together for Rare' on the International Rare Disease Day (28 February).The virtual conference was co-powered by Takeda Pharmaceutical and was supported by Japan Embassy.Over 7000 rare diseases have been identified globally and experts opine that only 5 per cent of these have identified treatments. The conference witnessed engaging dialogues and discussions from eminent guests who underlined the need for increasing collaboration and commitment to tackle rare diseases out of which 450 have been reported in India affecting more than 70 million people.Speakers in the conference stressed on the urgent need for drafting a roadmap to collect disease prevalence data and guidelines on patients' registry at the local level along with the timely release of statistics."Coordinated actions across key stakeholders are key to successful implementations. We can address rare disease challenges by investing more and allocating more to leave no one behind. We must change our ways and make sure that our commitments are tangible," said Dr Laxmikant Palo, CEO, PPHF.The online event also focused on chalking out policies for evidence-based knowledge, innovation in therapies, better access to real-world data, funding of research for development for new medicines, among others. "The draft policy has proposed a high quantum of assistance for rare diseases. India has committed to provide health for all," said Rajender Kumar, Director, Prime Minister's Office, Government of India.Speakers discussed learning from cross country models and executing tailor-made solutions that work for the nation via active involvement of all the key stakeholders simultaneously. Dr. Rakesh Sarwal, Additional Secretary, Niti Aayog said, "It is my suggestion to build a network among caregivers, healthcare providers and patients to raise awareness on rare diseases in India. Connecting them through teleconsultation or telemedicine can give access to doctors to access data on rare diseases."The conference witnessed participation from dignitaries including Dr Laxmikant Palo (CEO, PPHF), Dr Archisman Mohapatra (Executive Director, GRID Council), Dr Rakesh Sarwal (Additional Secretary, Niti Aayog), Rajender Kumar (Director, Prime Minister's Office, Government of India), Prof Rajendra Pratap Gupta, (Chair - Dynamic Coalition on 'Internet & Jobs', Internet Governance Forum United Nations, Mumbai Metropolitan Region) and Dr Mahender Nayak (Area Senior Vice-President, ICMEA, Takeda), Susanne Weissbaecker (Head Access to Medicine, GEM, Takeda), Koki Sato General Manager, Takeda, Dr Amandeep Kang, MD NHM Chandigarh, Dr Tanushree Mondal Deputy Director of Medical Education, Govt of West Bengal, Blaine Penny, Treasurer & Co-Chair, CORD, Durhane Wong-Reiger, President & CEO, CORD, Dr Bobby John, Managing Director, Aequitas Consulting Pvt. Ltd. among others."Takeda is a value-driven patient-centric orgzation and is committed to the cause of rare diseases. We understand the challenges posed by the unmet needs in diagnosing and managing rare diseases and closely engage with multiple stakeholders at every stage of the patients' progress. Our vision is to ensure seamless access of our innovative therapies to patients and improve the standard of care through focused initiatives," said Mahendra Nayak, Area Senior Vice-President, ICMEA, Takeda, underlining the role of pharmaceutical compes in this mission.The Global Conference on Rare Disease will bring rare diseases to the forefront of healthcare discussions to raise awareness and build partnerships for better outcomes. "Nobody should have to choose between paying for treatment of rare diseases or feeding and schooling of their children," underlined Susanne Weissbaecker, Head Access to Medicine, GEM, Takeda.This story is provided by NewsVoir. will not be responsible in any way for the content of this article. (/NewsVoir)( With inputs from ANI )Disclaimer: This post has been auto-published from an agency feed without any modifications to the text and has not been reviewed by an editor

Home

City

Latest News

Cricket

LT Premium

National

International

Maharashtra

Opinions

Chhatrapati Sambhajinagar

Nagpur

Entertainment

Photos

Business

Technology

Sports

Lifestyle

Social Viral

Lokmat Games

Health

Pahalgam Terror Attack

Tahawwur Rana

IPL 2025

CM Devendra Fadnavis

Mumbai Local

Weather Update

Rajender KumarFOLLOW

Rajender kumar, Latest News

Politics :Bikaner land deal case: Cong terms allegations against Robert Vadra as false

New Delhi, Dec 27 The Congress has defended Robert Vadra in the Bikaner land deal case, claiming that ... ...

National :Gurugram: Non-bailable warrant issued against 18 developers for contempt of RERA orders

Gurugram, Dec 7 The Real Estate Regulatory Authority (RERA) of Gurugram issued non-bailable warrant against 18 city-based builders ... ...

National :'Illegal' construction of gangster razed in Gurugram

Gurugram, Sep 22 In a bid to tighten the noose around unauthorised constructions, the enforcement wing of the ... ...

National :Delhi Police arrest two for running interstate illegal arms racket, 20 pistols recovered

The Delhi Police on Tuesday busted an inter-state illegal firearms syndicate and arrested two persons in this connection. ...

Technology :Allegations of surveillance on specific people has no concrete basis or truth: Govt

New Delhi, July 18 Amid reports of snooping of prominent citizens, the Indian government said that allegations of ... ...

Business :PPHF, Niti Aayog Co-host Global Rare Disease Conference on International Rare Disease Day

To call for effective dialogue and decisive action against the alarming challenges of rare diseases in India, People to People Health Foundation (PPHF), a public health organization working towards better healthcare and Niti Aayog, Co-hosted a Global ...